Lyme Patient Story (23)
I have chronic lyme and have been disabled due to it for about 6 years now. All signs point to me having had lyme all my life. Why? Severe allergies, lifetime of insomnia, week immune system, 10+ cases of severe bronchitis & pneumonia, and even common things kids get hit me harder and kept me down longer.
I was in the dark for four years after I lost the ability to function. I have been routinely mistreated (like nightmarishly so) by the medical system here in the US. When I had the lab tests done and was diagnosed with lyme I was told I also had bart and babs. The 3 were keeping each other in check and I was told to get on ABX ASAP or coma and/or death would be in my very near future.
My thyroid was shutting down. My hormones so out of whack on paper I didn’t even register as female anymore. I didn’t do what the doctor said. I researched every other method of treatment and just did what felt right. For years I had tried to work with the system. Now I go the easy path, where life takes me.
I’ve been on my own protocol for just over a year and recently had the gamut of blood test run again. My non LLMD said it’s okay to treat for bart or babs now. I tend to to feel like I’m always getting better. With all I deal with I’ve sincerely never been more happy or human in my entire life. Aside from this blood test nothing physically health wise substantiates my belief that it’s getting better.
Severe peripheral neuropathy pain. Keeps me from walking, moving around much, and is reaching further down my leg than it has in the 5 years it’s been my everyday reality. I have a pain management specialist who diagnosed the nerve damage, has witnessed the pain, and prescribes me oxycodone, diazepam, promethazine. Oxy for pain. Prometh (a recent add) to counter the reeling nausea and horrendous itching the oxy causes me) Diaz to counter the seizure like spasms I experience mmost often when tryin to go to sleep.
Are these seizures? Just curious. Diazepam eases them or just nips them inthe bud.
-gradual loss of all senses after utmost pain, sweating bullets….all in the space of 5 minutes, to the point that I’m blind, but can speak. Then involuntary tensing of the body(right mostly, where neuropathy was documented as severe) and convulsions of sorts during which i gain my sight, but lose my ability to speak.
Sudden paralysis upon laying down and relaxing the whole body after a day of moderate activity. Cannot speak, swallow, or feel my body at all. Lasting up to an hour at most. Just curious because if these are common herxing things then maybe I should be suffering more. I struggle with taking anything (prescribed or not) to treat my body. That rub could be there in my mind for a reason.
I recognize lyme and co as a consciousness that shares this body with me. To an extent I have to love it cuz it is what allows me to be here on this plane/part of this reality.
Being sick/disabled has brought me to knowing & unknowing myself full circle and other than just continue to be/biding time I don’t know what I’m even doing here.
I’ve made friends over the years. I’m the only person I know trying to find health using only natural means. Are you there?
I’m okay if limitation means lyme for the rest of my time. I still choose happiness and even aspire to greatness living my dream of being a model and making the general population aware of lyme disease and how insanely evil it is, pretty much, lol.
I really thought I had MS. My symptoms are TONS, so I can’t or won’t subject you to a list of em. Biggest barrier to life(for me) is not being able to read. I either cannot understand, retain info, even tho I used to be just shy of a genius. Or I can’t read more than a few sentences (in a post or a tweet or messages) without one of my eyes acting up, giving me eye pain headaches and forcing me to wear a patch over the eye that hurts in order to retard a terrible head ache that is sensitive to even my movement through space.
I am often dumb as a post & don’t have a filter on what I say, do, or how I interact anymore, so know I don’t mean to offend. It’s a very BPD thing & my brain is all kinds of wired wrong and really always has been.
Thanks for reading. Take care and trust me, I’m not the bad guy fishing for info. I believe we can all find health, peace, joy, and love. I respect that each soul has their own path to walk and I thank you for letting me join you along your journey.
I forgot to mention I have spinal arthritis and bone spurs. Nearly every other lymie has arthritis in their limbs not back.
IT says exercise is super important: that makes me feel screwed. I was prescribed physical therapy but my pain is easily exacerbated by movement even as subtle as breathing. Before getting diagnosed with lyme and co I did a heavy metal detox and a couple of clarkia cleanses. When I told my doctor about the clarkia he actually said that may have screwed me as far as recovery.
He isn’t a LLMD, but was referred to me by a local lymie as he takes a particular interest inn this area. He supports me in my choice to treat naturally and some of his suggestions and opinions are right on.
- My Protocol:
- Mercola changed their ubiquinol & with the help of my FB frindz I discovered a cheaper route (via vitacost) by which to travel my medicines to me.
- I only get purple defense from there now. It comes in a box: absurdly large, yet useful for shipping my etsy goods.
- And an awesome YOUTUBE frind turned me onto Vitamin C round teh clock.
- So add these to errything below:
- Superior Krill Oil- 1,000 mg
- Natural Astaxanthin- 10 mg
- Ubiquinol CoQH- 100 mg twice a day
- Organic Camu Camu Powder – 2 grams in water every 2 hours
I take cat’s claw, pau d’ arco, maca, MSM, silica, and fenugreek daily to treat/manage my lyme disease & co-infections of babesia & bartonella & improve my health. Fenugreek I take in place of using deodorant & taking herbal digestive aids before every time I eat.
I avoid gluten, dairy, eggs, msg, caffeine, conventional foods (not USDA organic), processed foods, and sugar. Forgot to mention I avoid soy due it causing hormonal imbalance. I take 5mg of valium along with 6 sprays of oral melatonin & 2 generic benedryl to sleep. I also take it at the onset of involuntary movements/spasms, such as opening wide my mouth & back arching, to prevent full on seizures.
Posted in Lyme Disease Treatments