Lyme Disease Story (7)

I was a very healthy 47 year old woman. It was summer time; I just got engaged and was planning my wedding. It was the best time of my life until July 22, 2007 when I found a tick on the back of my neck. I was cutting the tree in my back yard for the party after the wedding that was taking place on 9-15-07. Cut the tree, went swimming, enjoying a glass of wine while sunning.

Around 5-6 that night, J. found the tick on the back of my neck, my life after that day went from “Heaven” to “H***”.

I woke up 8 days later sick and I mean sick. I had numbness, neck pain, knee pain so bad I wanted to die. The burning all over my upper body was bad, and I had the worse flu and it was 98 outside but yet I was freezing for two days. I had no idea what was wrong with my body, it scared me, and then I remembered the tick.

I went to the doctor, he told me it was stress from planning the wedding, I then told him about the tick (I had no rash). He put me on doxy, I lasted two days on that, allergic to it. He then put me on Amoxicillin that lasted 14 days, became allergic to it. We stopped all meds so I could get married without a problem.

On 9-15-07, I got married, it was a wonderful day, one I will never forgot. Jim married me knowing this would be a long battle, he did not care; he said he would fight with me. We did have to cancel our honeymoon due to me being so sick, we were going to Rivera Maya in Mexico. We then went to Lake Geneva for three days, it was wonderful.

A few days after we got home, I saw an allergist. He, my ID doctor and family doctor decided to try Cefuroxime (4 hours later while waiting to see if I would have a reaction) I went home. I sent my blood to Ingenx in CA for a western blot and co-infection testing.

The phone call came 14 days later, I have Lyme Disease. I cried and cried, I did not want that answer, but at the same time felt relived to know I was not CRAZY.

I’ve been on Cefuroxime antibiotic treatment since 10-16-07 and will be for many more months. I can’t take any other pills for lyme as I’m allergic to all meds that treat it. I’m also seeing a Chiropractic that does Natural care for lyme, a wonderful man.

I’m not sure where this road will lead, I have good days (and I thank god for each one I have) and I have very bad days. When I have my bad days, I look in my journal and re-read my “Good Days” and know there will be more.

Below is what I wrote on another board at Thanksgiving, I think we all need to think positive and know we will win this battle. I was thinking last night; I have so much to be grateful for. Even though I have lyme, I have more than a lot of people in this world.

I have a wonderful new husband, a loving family, a job, food on my table and a roof over my head. My god there are people in this world that don’t even have water to drink. So while I sit here many times feeling sorry for myself I have to stop for a moment each day and “Thank God” for the wonderful things I do have.

None of you know anything about me except I have “Lyme”. I’m also dealing with a terminally ill mother; I am her caregiver and have been for 2 years. When I look at my mom, she always has a smile on her face, even knowing it might be her last day on this earth. She has such a positive outlook on life; she is my rock when I should be hers.

So the moral of my long story is; As bad as it gets and yes it gets bad, we should take a moment out of each day and be thankful for the wonderful things we do have in our life’s, and know that we will win this battle.

Lyme will not win, we will and we WILL…!

Anonymous Patient

Ca, U.S.A

Tags: lyme patient story, lyme patients

Posted in Lyme Disease Stories